00:00:58.406 --> 00:01:00.186
Relax.

00:01:08.687 --> 00:01:10.959
How so?

00:01:10.960 --> 00:01:15.023
-Like this.
-I don't know about this, son.

00:01:15.821 --> 00:01:18.106
He didn't say anything
about you driving.

00:01:18.814 --> 00:01:20.791
-Like this.
-No.

00:01:21.576 --> 00:01:24.238
He's never driven
in the streets of Rio!

00:01:28.940 --> 00:01:31.828
You've never driven
in Rio de Janeiro, son.

00:01:31.863 --> 00:01:34.928
It'll be fine, mom.
First time for everything.

00:01:42.309 --> 00:01:43.954
I got this.

00:01:43.989 --> 00:01:46.992
The car will be too heavy
with all of us in there.

00:01:48.513 --> 00:01:51.921
-We'll crash.
-Fabricio can wait, then.

00:01:51.922 --> 00:01:54.640
I'll wait to get in
after you get it up there.

00:01:54.641 --> 00:01:56.405
Why, mom?

00:01:56.406 --> 00:01:58.883
I'm worried
you'll crash the car.

00:01:58.884 --> 00:02:00.742
Fine then.

00:02:02.100 --> 00:02:05.304
-Fine, mom.
-Lord almighty!

00:02:06.451 --> 00:02:09.268
Your first time doing this
and you're...

00:02:09.269 --> 00:02:12.888
Yeah, mom, it's my first time.
Close the door, then.

00:02:16.603 --> 00:02:19.013
He didn't warn me at all.

00:02:19.048 --> 00:02:24.179
He knew I'd get on his case,
but it really is dangerous!

00:02:24.180 --> 00:02:27.567
He's never driven here in Rio.
It just seems silly.

00:02:40.908 --> 00:02:43.798
Couldn't you wait
to start filming outside?

00:02:45.011 --> 00:02:47.408
-What's she saying now?
-Let's go.

00:02:48.686 --> 00:02:52.814
-This bit is too difficult.
-What's she saying?

00:02:53.912 --> 00:02:57.803
-It's not just me being negative.
-She's shook.

00:02:57.804 --> 00:03:00.487
-Fuck it.
-Wait, you're already filming?

00:03:00.488 --> 00:03:03.457
Shit. Why didn't you warn me?

00:03:12.319 --> 00:03:14.607
You won't be able
to use any of it, then,

00:03:14.608 --> 00:03:16.941
'cause I talked
over the whole thing!

00:03:19.949 --> 00:03:22.843
What now?
How do we get out?

00:03:26.421 --> 00:03:29.121
Am I good on that side?
I think so, right?

00:03:32.363 --> 00:03:34.428
A little to the left.

00:03:44.569 --> 00:03:46.694
Goodness gracious.

00:03:46.695 --> 00:03:49.376
-That's a crash.
-Cut.

00:03:59.091 --> 00:04:01.206
That is my mom.

00:04:19.576 --> 00:04:23.296
The man with the hat
and the gold chain is my dad.

00:04:27.239 --> 00:04:29.767
He was very close
to one of my mom's brothers,

00:04:29.802 --> 00:04:31.254
my uncle Bill.

00:04:33.541 --> 00:04:35.694
They all lived
in the same neighborhood

00:04:35.729 --> 00:04:37.796
in Barra Mansa,
in the Rio countryside.

00:04:42.023 --> 00:04:44.503
When Uncle Bill got married,

00:04:44.504 --> 00:04:47.567
my dad was the one who drove
Aunt Celi to church

00:04:47.602 --> 00:04:49.789
in his red Alfa Romeo.

00:04:55.446 --> 00:04:57.125
Back then,

00:04:57.126 --> 00:04:59.875
my uncle was the family's
designated filmmaker.

00:05:00.548 --> 00:05:02.831
With his Super 8 camera,

00:05:02.866 --> 00:05:05.695
he'd stage and film
short tales.

00:05:17.096 --> 00:05:18.617
In one of them,

00:05:18.652 --> 00:05:21.206
my mom shows up
at my grandma's ranch

00:05:21.241 --> 00:05:22.927
carrying a baby.

00:05:26.908 --> 00:05:30.227
She seems to be looking
for the baby's father.

00:05:38.073 --> 00:05:41.402
Aunt Celi opens the door
and calls the man of the house.

00:05:45.700 --> 00:05:47.596
My dad comes to the door

00:05:47.631 --> 00:05:50.655
and they shoo my mom away
with sticks.

00:05:57.542 --> 00:05:59.270
That was in the late '70s,

00:05:59.305 --> 00:06:01.806
when mom and dad
were still dating.

00:06:05.228 --> 00:06:08.331
Am I good to go? Can I?

00:06:08.366 --> 00:06:10.464
-I won't be looking at you.
-Go for it.

00:06:15.012 --> 00:06:17.507
Uncle Bill was also
the first in the family

00:06:18.397 --> 00:06:20.672
to own a VHS camera.

00:06:35.049 --> 00:06:37.773
My earliest appearances
on video

00:06:37.808 --> 00:06:39.353
were shot on that camera.

00:06:40.330 --> 00:06:42.255
Two hours of footage.

00:06:42.956 --> 00:06:44.855
Ain't that right?

00:06:47.254 --> 00:06:50.318
I was little over one year old.

00:06:59.605 --> 00:07:01.641
We got the Turtle Crew here.

00:07:07.631 --> 00:07:11.464
You'll knock the glasses over
and make a huge mess.

00:07:12.322 --> 00:07:14.449
Cris, could you hand me
the glasses?

00:07:21.659 --> 00:07:24.391
Does that pick up sound too, Bill?

00:07:24.392 --> 00:07:25.971
Sure does.

00:07:27.483 --> 00:07:29.534
Given the possibility

00:07:29.569 --> 00:07:32.465
of recording sound and image
simultaneously

00:07:32.500 --> 00:07:35.243
and capturing moments like those,

00:07:35.278 --> 00:07:37.901
my dad bought
a VHS camera of his own.

00:07:37.902 --> 00:07:43.849
MY NAME IS DANIEL

00:08:00.434 --> 00:08:02.855
We'd been trying to conceive.

00:08:06.332 --> 00:08:08.198
At that point,

00:08:10.127 --> 00:08:12.788
we'd been married
for four, five years.

00:08:14.781 --> 00:08:16.874
We wanted a son.

00:08:17.841 --> 00:08:20.810
We made our plans
and I got pregnant.

00:08:22.795 --> 00:08:26.841
We didn't want to know
the child's gender beforehand.

00:08:26.842 --> 00:08:29.846
We were on pins and needles
waiting to find out

00:08:31.239 --> 00:08:35.379
but I had a feeling
it was a boy.

00:08:41.770 --> 00:08:46.231
My water broke
before nine full months were up

00:08:47.858 --> 00:08:50.053
and once we got
to the hospital,

00:08:50.054 --> 00:08:55.136
I wasn't experiencing
any contractions or dilation.

00:08:55.171 --> 00:08:57.340
All I knew was that
the water had broken.

00:08:57.913 --> 00:09:03.343
The doctor felt that,
since you were ahead of schedule,

00:09:03.344 --> 00:09:08.039
he'd administer medication
to make you wait a bit longer.

00:09:08.040 --> 00:09:11.683
From the moment my water broke
and the time you were born,

00:09:11.718 --> 00:09:14.220
twenty-four hours had elapsed.

00:09:18.921 --> 00:09:22.315
You cried right away
when you came out.

00:09:23.118 --> 00:09:26.534
They brought you to me
and you weren't purple.

00:09:27.583 --> 00:09:29.639
Everything else was normal.

00:09:29.674 --> 00:09:32.929
They brought you to my room
and you stayed with me.

00:09:33.835 --> 00:09:35.514
I breastfed you.

00:09:38.918 --> 00:09:42.415
Then, we started seeing
a whole host of things.

00:09:42.416 --> 00:09:47.790
Doctors felt you might've had
a bowel obstruction.

00:09:49.229 --> 00:09:51.540
We switched the milk.

00:09:52.387 --> 00:09:55.769
I stopped breastfeeding you.

00:09:55.770 --> 00:09:57.936
We even gave you
this imported milk.

00:09:57.971 --> 00:10:00.936
Then they felt
you were just hungry.

00:10:00.971 --> 00:10:02.935
They put you through
some more tests,

00:10:02.970 --> 00:10:06.149
but there was no obstruction.

00:10:08.268 --> 00:10:11.141
We started seeing
that even six months on,

00:10:11.142 --> 00:10:15.402
you were still
a bit sluggish at times.

00:10:16.920 --> 00:10:19.854
You kept your tiny hands
balled up into fists,

00:10:19.855 --> 00:10:21.788
with your thumb tucked in.

00:10:22.806 --> 00:10:26.465
At that point, his doctor,
who's no longer with us,

00:10:27.297 --> 00:10:29.152
made the recommendation

00:10:29.153 --> 00:10:32.196
that we should take you
to a neurologist in Rio.

00:10:34.390 --> 00:10:38.933
What that neurologist told us,
his prognosis,

00:10:38.934 --> 00:10:43.016
was that he couldn't say
what ailed you,

00:10:43.017 --> 00:10:45.568
whether it stemmed
from childbirth complications

00:10:45.603 --> 00:10:48.433
or if it was a hereditary issue,

00:10:48.434 --> 00:10:50.651
but his recommendation
at the time

00:10:50.652 --> 00:10:55.690
was to start physical therapy.

00:10:55.691 --> 00:10:58.823
Different things designed
to stimulate you.

00:11:03.508 --> 00:11:05.680
I'm never offering to be
the cameraman ever again!

00:11:05.681 --> 00:11:07.665
Come here, man.

00:11:11.549 --> 00:11:13.230
Stimulus.

00:11:13.265 --> 00:11:16.566
I've done physical therapy
ever since then, for stimulus.

00:11:18.606 --> 00:11:21.276
I saw a number of doctors
since then,

00:11:21.277 --> 00:11:25.133
but none could say
what it is that I have.

00:11:28.160 --> 00:11:31.035
When I made up my mind
to make this movie,

00:11:31.036 --> 00:11:34.084
taking up the search
for a diagnosis once again

00:11:34.085 --> 00:11:37.193
seemed like the best way
to tell this story.

00:11:37.228 --> 00:11:39.322
Happy birthday to you

00:11:39.357 --> 00:11:42.262
Happy birthday, dear Daniel

00:11:42.297 --> 00:11:44.590
Happy birthday to you

00:11:44.591 --> 00:11:46.837
Happy birthday to you

00:11:46.838 --> 00:11:49.072
Happy birthday to you

00:11:49.073 --> 00:11:52.131
Happy birthday, dear Daniel

00:12:00.554 --> 00:12:03.444
The first step
on this new quest

00:12:03.445 --> 00:12:06.275
would be a new MRI exam.

00:12:07.736 --> 00:12:11.863
There have been huge advances
since the time of my birth,

00:12:11.864 --> 00:12:14.148
and it could now confirm
the suspicion

00:12:14.149 --> 00:12:16.616
that I have a form
of cerebral palsy

00:12:16.651 --> 00:12:19.967
caused by complications
I experienced as a baby.

00:12:21.702 --> 00:12:24.482
Good afternoon.
Who's this? Josi?

00:12:25.667 --> 00:12:28.247
Josi, my name is Daniel.

00:12:28.248 --> 00:12:32.741
I got in touch
with the clinic yesterday

00:12:32.742 --> 00:12:36.500
concerning the filming
of a documentary.

00:12:38.115 --> 00:12:41.123
Did anyone fill you in?

00:12:41.124 --> 00:12:44.935
The camera is not allowed
inside the MRI chamber.

00:12:44.970 --> 00:12:47.282
We've had someone else
film in there before

00:12:47.283 --> 00:12:49.992
and we do understand
the filmmaker's presence,

00:12:49.993 --> 00:12:52.765
but the camera itself
is not allowed in there.

00:12:52.766 --> 00:12:54.688
Right, I understand.

00:12:54.689 --> 00:12:58.280
I know, you can't have
any metals in there.

00:12:58.281 --> 00:13:00.145
Other than that...

00:13:03.396 --> 00:13:08.537
Do you have any idea of when
I should expect an answer?

00:13:58.426 --> 00:14:00.579
When I turned three years old,

00:14:00.580 --> 00:14:03.678
my parents started thinking
about having another child.

00:14:05.548 --> 00:14:08.043
In order to figure out
if there was any chance

00:14:08.044 --> 00:14:10.922
that this next child
could have the same disability,

00:14:10.957 --> 00:14:13.417
they did genetic testing,

00:14:13.452 --> 00:14:16.760
which pegged
the odds of that at 4%.

00:14:19.610 --> 00:14:23.126
On November 11th 1989,
Bia was born

00:14:23.127 --> 00:14:25.511
and her case
was not a repeat of mine.

00:14:25.512 --> 00:14:28.644
Happy birthday to you

00:14:28.679 --> 00:14:31.357
Happy birthday, dear Bia

00:14:31.358 --> 00:14:33.554
Happy birthday to you

00:14:37.248 --> 00:14:39.333
Things were going well with me,

00:14:39.368 --> 00:14:42.773
so finding out what I had
didn't seem as important.

00:14:42.774 --> 00:14:46.348
Dad, get the birdie!

00:14:48.058 --> 00:14:50.197
What's that you got
in your hand, buddy?

00:14:50.198 --> 00:14:51.834
A lollipop.

00:14:51.835 --> 00:14:54.369
-What?
-A lollipop!

00:14:58.728 --> 00:15:00.566
Looking back
through this footage,

00:15:00.601 --> 00:15:02.636
I realize that my family

00:15:02.671 --> 00:15:05.480
never treated me
like a special case.

00:15:06.422 --> 00:15:08.629
My parents
always did their best

00:15:08.664 --> 00:15:10.651
to get me involved,

00:15:10.686 --> 00:15:12.806
and I do that to this very day.

00:15:12.807 --> 00:15:16.182
Today we're filming
Daniel's school party.

00:15:17.712 --> 00:15:20.631
We work the soil
through and through

00:15:20.632 --> 00:15:24.123
so the plants can breathe.

00:15:24.124 --> 00:15:26.041
Look at that, my friends!

00:15:26.076 --> 00:15:28.679
Who's that coming our way?

00:15:28.680 --> 00:15:32.489
The lofty worm
who churns the soil!

00:15:32.490 --> 00:15:34.471
So cute!

00:15:35.629 --> 00:15:37.829
Going this way and that.

00:15:56.109 --> 00:15:58.899
That day, my parents
didn't pick up

00:15:58.900 --> 00:16:02.322
on a comment
from a fellow viewer.

00:16:04.309 --> 00:16:06.392
Poor guy!

00:16:06.393 --> 00:16:10.290
This one couple
said "oh, poor guy",

00:16:10.291 --> 00:16:13.383
and I replied:
"Poor guy, my ass!"

00:16:13.384 --> 00:16:15.934
I was ten years old.

00:16:16.572 --> 00:16:20.330
I've always tackled
incidents like that head-on.

00:16:20.331 --> 00:16:23.806
When I noticed someone
talking about my condition,

00:16:23.807 --> 00:16:27.942
I always lashed back,
often with poor manners.

00:16:29.104 --> 00:16:31.505
At times, being rude
is necessary.

00:16:31.506 --> 00:16:34.056
You can all breathe now.

00:17:09.926 --> 00:17:13.501
That kid who's with me
in the fire truck is Cleber.

00:17:16.125 --> 00:17:19.504
One of the biggest constants
in my family's home videos.

00:17:26.471 --> 00:17:29.645
Can't this fireman
ring the alarm? Come on!

00:17:29.646 --> 00:17:33.950
Cleber was the son of the super
for my building

00:17:33.985 --> 00:17:36.187
and he was
my first best friend.

00:17:38.902 --> 00:17:41.339
I think it was my mom
who brought us together.

00:17:44.515 --> 00:17:45.786
Is that heavy?

00:17:45.787 --> 00:17:47.769
We've got
a fireman-in-training here!

00:17:50.779 --> 00:17:53.086
Look that way, melon head!

00:17:53.087 --> 00:17:55.404
Over there, melon head.

00:17:56.113 --> 00:17:58.278
Don't call me melon head!

00:18:00.841 --> 00:18:03.223
Film us play fighting, dad.

00:18:03.606 --> 00:18:05.726
Didn't we do that already?

00:18:05.727 --> 00:18:08.623
We played a lot
with GI Joes.

00:18:08.624 --> 00:18:11.261
Legos and Playmobils.

00:18:14.868 --> 00:18:17.047
We loved Jaspion

00:18:17.082 --> 00:18:19.823
and played the hell
out of "California Games"

00:18:19.824 --> 00:18:21.295
on the Master System.

00:18:22.041 --> 00:18:24.361
Hey, you'll hurt yourselves.

00:18:24.396 --> 00:18:26.154
Okay, that's enough of that.

00:18:35.024 --> 00:18:37.369
We also played
a lot of button football

00:18:37.404 --> 00:18:39.088
while listening to Netinho.

00:18:41.149 --> 00:18:42.875
Where's your sword?

00:18:50.631 --> 00:18:53.032
We were always at the pool

00:18:53.033 --> 00:18:55.485
and visited Angra
a number of times.

00:18:56.820 --> 00:18:58.255
Hey dude!

00:19:05.302 --> 00:19:06.924
Look this way, junior.

00:19:13.771 --> 00:19:15.777
Those were great times.

00:19:31.546 --> 00:19:33.735
Everything you say
is being recorded.

00:19:33.736 --> 00:19:36.767
Right, I know.
Just like that one time!

00:19:49.385 --> 00:19:51.800
This is us right here,
isn't it, son?

00:19:53.688 --> 00:19:55.177
Oh, over there.

00:20:03.333 --> 00:20:05.739
Hello.
How are you?

00:20:06.931 --> 00:20:09.153
I have an MRI exam scheduled.

00:20:09.188 --> 00:20:11.484
I need the doctor's
request letter, please,

00:20:11.519 --> 00:20:14.383
along with your ID
and health insurance card.

00:20:14.384 --> 00:20:16.056
Here's the letter.

00:20:35.920 --> 00:20:38.843
I don't think
you need to fill that out.

00:20:43.403 --> 00:20:45.103
You fill it out.

00:20:49.469 --> 00:20:51.707
The reason
we scheduled the exam?

00:21:00.278 --> 00:21:01.983
Just a little twinge.

00:21:03.241 --> 00:21:05.654
There we go.
You can relax now.

00:21:05.655 --> 00:21:06.905
-Ow.
-All done.

00:21:10.503 --> 00:21:12.530
Let me get this off.

00:21:16.859 --> 00:21:20.403
-I'm worried he might feel ill.
-Do you get queasy?

00:21:20.404 --> 00:21:22.883
Not usually.
I just get a little nervous.

00:21:23.756 --> 00:21:26.586
He's usually lying down
when they draw blood.

00:21:26.587 --> 00:21:30.148
I'm giving you saline
right now, okay?

00:21:30.183 --> 00:21:33.906
You'll get the contrast agent
during the exam, okay?

00:21:33.907 --> 00:21:34.975
Okay.

00:21:34.975 --> 00:21:35.240
Okay.
I'm going to squeeze
for just a moment.

00:21:35.240 --> 00:21:37.515
I'm going to squeeze
for just a moment.

00:21:50.321 --> 00:21:52.323
Doing okay? Feeling anything?

00:21:52.358 --> 00:21:54.704
Nothing, really.
Just nervousness.

00:21:56.931 --> 00:21:59.811
-Does it hurt?
-No.

00:21:59.812 --> 00:22:03.214
-Hold this a second.
-It's just nerves.

00:22:04.297 --> 00:22:06.303
-For now.
-Right.

00:22:08.343 --> 00:22:09.574
There.

00:22:09.609 --> 00:22:12.937
I'll come get you
for the exam shortly, okay?

00:22:12.972 --> 00:22:14.311
Excuse me.

00:22:15.507 --> 00:22:17.366
Okay.

00:22:20.146 --> 00:22:21.977
You're tense.

00:22:23.550 --> 00:22:27.028
-Feeling weak, son?
-Not yet.

00:22:27.063 --> 00:22:29.357
Look up and breathe.

00:22:33.345 --> 00:22:35.068
You're super pale right now.

00:22:38.703 --> 00:22:41.992
-Don't stare at the thing.
-It's not that, mom.

00:22:45.957 --> 00:22:48.270
-I'm going to black out.
-Really?

00:22:49.197 --> 00:22:51.677
Hold on. Stay calm.
Breathe.

00:22:51.678 --> 00:22:55.047
I am totally calm,
but I know I'll pass out.

00:22:55.048 --> 00:22:57.344
We'll have to call someone.

00:22:57.345 --> 00:22:59.847
I'm passing out.
I'm going.

00:23:08.340 --> 00:23:11.461
Get someone in here.
We need to lay him down.

00:23:11.496 --> 00:23:13.307
Hold on. I'll get a stretcher.

00:23:13.342 --> 00:23:16.237
Just stick your leg out.
Like that.

00:23:16.238 --> 00:23:18.524
Get the stretcher
so we can lay him down.

00:23:27.178 --> 00:23:29.551
-Daniel.
-Yeah?

00:23:30.511 --> 00:23:32.671
We need to be quick about it.

00:23:32.672 --> 00:23:34.066
Right here.

00:23:34.901 --> 00:23:37.162
Lock it in place, Jean.

00:23:37.163 --> 00:23:38.578
Hold on.

00:23:40.159 --> 00:23:42.597
Daniel, keep your head up
like this.

00:23:42.632 --> 00:23:43.985
Daniel.

00:23:43.986 --> 00:23:46.624
Help me hold him up
'cause he's fainting!

00:23:46.625 --> 00:23:48.507
Oh, my goodness.

00:23:48.508 --> 00:23:49.884
Grab his legs, Jean.

00:23:49.919 --> 00:23:51.586
We're doing this in one go.

00:23:51.621 --> 00:23:54.256
-Careful with his neck.
-You can let go now.

00:24:00.090 --> 00:24:01.620
Stay calm, son.

00:24:01.621 --> 00:24:05.802
-I am.
-No, you're not calm at all.

00:24:06.906 --> 00:24:10.146
You only pass out
when you're not calm.

00:24:10.181 --> 00:24:12.176
Inch him over that way.

00:24:12.177 --> 00:24:15.783
-You're sweating like crazy.
-Let me take him over.

00:24:17.448 --> 00:24:19.847
It's okay for me
to be in there, right?

00:24:19.882 --> 00:24:22.316
I just need you
to leave your things, ma'am.

00:24:22.351 --> 00:24:24.164
Any cards, coins, cell phones...

00:24:24.199 --> 00:24:26.828
-Anything metallic.
-Right, I'll leave it here.

00:24:30.274 --> 00:24:32.208
I'm taking this off then.

00:25:24.600 --> 00:25:27.206
-Is it coming together okay?
-It's great.

00:25:31.730 --> 00:25:32.822
Hello there!

00:25:32.823 --> 00:25:36.291
The family's all together
now that the tree is ready.

00:25:38.511 --> 00:25:40.614
The Christmas tree.

00:25:49.085 --> 00:25:51.532
Mommy's going to hide now!

00:25:52.726 --> 00:25:54.903
-We're almost out.
-I'm going to hide.

00:25:57.337 --> 00:25:59.552
-We're out.
-That's it?

00:25:59.553 --> 00:26:02.949
These recordings
are a bit of a rarity

00:26:02.950 --> 00:26:05.331
out of everything
we recorded,

00:26:07.063 --> 00:26:11.122
because they show
our everyday life at home,

00:26:11.123 --> 00:26:13.783
and dad tended to record
very little of that.

00:26:15.028 --> 00:26:17.016
On that specific day,

00:26:17.017 --> 00:26:19.585
I guess he was almost
out of tape already

00:26:19.586 --> 00:26:22.975
and decided to use up
the last little bit.

00:26:24.995 --> 00:26:26.875
I doubt anyone imagined

00:26:26.876 --> 00:26:30.097
this footage would end up
in a movie someday.

00:26:32.232 --> 00:26:34.190
If mom could've guessed,

00:26:34.191 --> 00:26:36.737
I'm sure she would've picked
a nicer outfit.

00:26:43.101 --> 00:26:45.794
Now you hide.
Your turn.

00:26:47.967 --> 00:26:50.177
-Bia!
-Where's Bia?

00:26:50.178 --> 00:26:52.289
Found you!

00:26:52.290 --> 00:26:55.091
Hide from mommy, c'mon.

00:27:02.644 --> 00:27:04.159
What are you doing?

00:27:08.448 --> 00:27:11.142
-You!
-What are you up to?

00:27:11.177 --> 00:27:13.286
I told you I didn't want
to be caught on camera

00:27:13.287 --> 00:27:15.080
without fixing myself up!

00:27:16.609 --> 00:27:19.814
And I told you this isn't
a major production.

00:27:20.566 --> 00:27:23.491
I don't want to look ugly
on the big screen!

00:27:23.492 --> 00:27:25.587
You think you look ugly?

00:27:26.148 --> 00:27:28.839
-I'm just having a snack.
-That's the idea.

00:27:29.937 --> 00:27:31.770
Aren't you using the...

00:27:34.899 --> 00:27:38.268
-Aren't I what?
-Not using a tripod?

00:27:38.303 --> 00:27:39.973
Not right now.

00:27:41.665 --> 00:27:44.464
Filming Daniel has always
been easier,

00:27:44.499 --> 00:27:47.542
but being filmed
at this very moment...

00:27:48.895 --> 00:27:50.397
Well, it's a little...

00:27:51.413 --> 00:27:53.192
A little iffy.

00:27:57.221 --> 00:28:00.089
Why? Why's that?

00:28:03.355 --> 00:28:06.495
Well, back when
I was behind the camera,

00:28:06.496 --> 00:28:08.690
you were still little.

00:28:09.360 --> 00:28:11.705
You acted cute for us.

00:28:13.373 --> 00:28:15.439
"There goes Daniel!"

00:28:16.206 --> 00:28:19.511
"Daniel is walking!
He did this and that!"

00:28:27.998 --> 00:28:29.472
What's up?

00:28:30.458 --> 00:28:32.332
Doing great.

00:28:35.601 --> 00:28:37.301
Bia.

00:28:39.626 --> 00:28:41.502
Hey, Beatriz.

00:28:45.277 --> 00:28:47.243
How 'bout you, Daniel?

00:28:48.277 --> 00:28:50.790
-Where are you?
-Say something, Dani.

00:28:50.791 --> 00:28:54.136
-Say something we can record.
-Something.

00:28:54.137 --> 00:28:57.895
Something important.
Say it loud.

00:28:57.896 --> 00:28:59.713
Loud.

00:29:02.587 --> 00:29:05.111
Give us a sentence.
Something pretty.

00:29:05.112 --> 00:29:08.093
-Wait, he'll say it.
-Victorious!

00:29:08.878 --> 00:29:10.637
-What?
-Victorious.

00:29:11.230 --> 00:29:13.018
Say it louder.

00:29:13.019 --> 00:29:14.907
Victorious 2001!

00:29:16.003 --> 00:29:18.311
Victorious 2001!

00:29:30.430 --> 00:29:32.233
Here's the family,

00:29:32.234 --> 00:29:35.160
minus the director
standing over there!

00:29:37.543 --> 00:29:39.568
The director on his feet.

00:29:40.452 --> 00:29:41.510
Hello, hello.

00:29:42.852 --> 00:29:45.585
-Are you rolling already?
-Yeah.

00:29:45.620 --> 00:29:48.845
-But why?
-We'll edit it later, mom.

00:29:52.075 --> 00:29:53.856
What did you want to say?

00:29:56.287 --> 00:29:58.021
I can't say it now!

00:29:58.056 --> 00:30:01.414
Sure you can, mom.
I want you to say it.

00:30:02.199 --> 00:30:05.032
I'm drawing a blank now!

00:30:05.033 --> 00:30:06.742
I can't believe this.

00:30:08.191 --> 00:30:10.097
Relax.

00:30:10.098 --> 00:30:12.756
Watch, you'll end up
using this for the film.

00:30:16.556 --> 00:30:18.884
I actually jotted down
some things

00:30:18.919 --> 00:30:21.375
while I was lying down
yesterday.

00:30:21.410 --> 00:30:23.631
I was remembering some things.

00:30:25.384 --> 00:30:29.242
-Grab your notes, then.
-No, I remember now.

00:30:29.277 --> 00:30:33.107
What I was thinking...

00:30:34.562 --> 00:30:37.641
Remember what I said?

00:30:39.223 --> 00:30:41.714
One thing that I feel
was good for you

00:30:41.749 --> 00:30:43.983
and good for me too,

00:30:44.018 --> 00:30:45.820
for both of us,

00:30:45.855 --> 00:30:50.126
was that we didn't
get fixated

00:30:51.346 --> 00:30:54.834
on what you were supposed
to be doing at a given age.

00:30:55.401 --> 00:30:58.024
Like: "Oh, he's one year old,

00:30:58.059 --> 00:31:00.193
so he's supposed
to start walking now

00:31:00.228 --> 00:31:02.126
and start doing
this and that."

00:31:02.161 --> 00:31:05.382
Because it's like I used to say.

00:31:06.904 --> 00:31:10.678
We'd live our lives
in frustration that way.

00:31:10.679 --> 00:31:14.112
Right? 'Cause you'd never
keep up the pace.

00:31:15.221 --> 00:31:18.870
I don't even know
how we came around to that.

00:31:18.905 --> 00:31:21.080
If maybe someone told us.

00:31:21.115 --> 00:31:24.292
I guess we just saw you
as you.

00:31:24.327 --> 00:31:26.728
We were concerned, naturally,

00:31:26.763 --> 00:31:30.095
with you being able to walk and...

00:31:33.004 --> 00:31:35.075
There were steps
you had to take

00:31:35.110 --> 00:31:37.629
to develop
your handwriting too.

00:31:37.664 --> 00:31:39.498
We did have that concern,

00:31:39.533 --> 00:31:41.608
but we didn't feel a need

00:31:41.643 --> 00:31:45.578
to compare you
over and over again.

00:31:47.450 --> 00:31:49.103
Come here, son.

00:31:49.104 --> 00:31:52.102
Walk over to daddy. Go on.

00:31:53.179 --> 00:31:58.001
I took my first steps
when I was about six.

00:31:58.002 --> 00:32:00.777
Arms down, son.
Keep them down.

00:32:00.812 --> 00:32:02.122
The other one too.

00:32:05.014 --> 00:32:07.189
Way to go, kid!

00:32:09.153 --> 00:32:12.201
That is the first
recorded footage

00:32:12.202 --> 00:32:14.038
of me walking unassisted.

00:32:15.576 --> 00:32:18.762
To this day, mom still repeats
some of those instructions.

00:32:18.763 --> 00:32:21.379
"Watch the tips of your feet.
Lower your arms."

00:32:21.993 --> 00:32:24.618
-Whoa there!
-Get back up.

00:32:29.954 --> 00:32:34.443
In a way,
we were privileged, see?

00:32:35.687 --> 00:32:37.517
Of that I have no doubt.

00:32:37.552 --> 00:32:41.010
If we didn't have
the financial resources we had,

00:32:41.011 --> 00:32:45.678
how would we have gotten you
into a regular school

00:32:45.679 --> 00:32:47.535
when you couldn't walk?

00:32:47.536 --> 00:32:51.000
You lacked the motor skills.
Right?

00:32:52.187 --> 00:32:56.755
You might've
ended up stuck at home.

00:32:56.790 --> 00:32:59.099
You don't want it, son?

00:32:59.100 --> 00:33:02.772
-It will get in the way.
-It won't.

00:33:02.773 --> 00:33:04.889
It won't, darling. It won't.

00:33:24.101 --> 00:33:29.596
I want you
to fight the tears

00:33:29.597 --> 00:33:32.704
To not look back

00:33:32.705 --> 00:33:36.543
Nor regret what you do

00:33:38.335 --> 00:33:43.377
I want to see love win

00:33:43.378 --> 00:33:46.427
But if pain blossoms

00:33:46.428 --> 00:33:50.965
May you endure
and overcome it

00:33:54.024 --> 00:33:57.975
Daniel de Castro Gonçalves.

00:34:11.820 --> 00:34:15.753
This is footage from
my graduation to first grade.

00:34:17.331 --> 00:34:20.216
I remember I learned to write
on the typewriter.

00:34:21.042 --> 00:34:23.882
I was a big hit
with my classmates.

00:34:25.055 --> 00:34:28.408
All the other kids
asked me to type.

00:34:28.409 --> 00:34:30.505
It stoked their curiosity.

00:34:31.243 --> 00:34:34.704
And I loved being able
to avoid calligraphy lessons.

00:34:42.588 --> 00:34:45.578
After basic education,
I had to switch schools.

00:34:46.679 --> 00:34:50.565
It's the Midsummer Festival
at Daniel's school, Meu Jardim.

00:34:50.566 --> 00:34:53.341
The year is 1991.

00:34:57.138 --> 00:34:59.785
On my first day
at the new school,

00:34:59.820 --> 00:35:02.250
this kid came up to my mom

00:35:02.251 --> 00:35:05.823
and asked her
why I walked like that

00:35:06.847 --> 00:35:09.900
and wouldn't go play
in the jungle gym.

00:35:09.901 --> 00:35:11.806
And she told him:

00:35:11.841 --> 00:35:14.256
"Well, why don't you ask him?"

00:35:18.360 --> 00:35:22.161
It took the school a while
to get used to me too.

00:35:23.545 --> 00:35:26.231
Some months
before that festival,

00:35:26.266 --> 00:35:29.498
the principal asked my mom

00:35:29.499 --> 00:35:32.619
if she felt that was truly
the right school for me.

00:35:37.450 --> 00:35:40.847
She argued that a smaller school
might be a better choice.

00:35:40.848 --> 00:35:43.695
"That's why I'm here," I said.
"This is smaller."

00:35:43.696 --> 00:35:46.457
"Any smaller than this
would mean home schooling!"

00:35:48.358 --> 00:35:51.952
After the initial shock of that,

00:35:51.953 --> 00:35:54.387
she relented and said:
"Okay, fine."

00:35:55.082 --> 00:35:58.252
Right? "Fine."

00:36:10.943 --> 00:36:12.917
At every school,

00:36:12.918 --> 00:36:17.340
there was an attendant
to help you.

00:36:17.341 --> 00:36:18.927
Right?

00:36:18.962 --> 00:36:22.522
But we always
stressed to them

00:36:22.557 --> 00:36:26.566
that we didn't want them
to act like babysitters.

00:36:27.347 --> 00:36:29.984
They're there to help him,

00:36:30.019 --> 00:36:33.423
but not to cling to them
incessantly.

00:36:34.453 --> 00:36:38.372
In fact, the attendants
helped the other kids too.

00:36:38.373 --> 00:36:41.543
They didn't just stick with you.

00:36:45.778 --> 00:36:49.339
Nice and tight, y'hear?

00:36:50.556 --> 00:36:54.903
A month into his classes,
Vera came over to talk to me.

00:36:54.904 --> 00:36:57.498
"Why didn't you tell me,"
she said,

00:36:57.533 --> 00:37:02.129
"that Daniel
was such a smart kid?"

00:37:02.670 --> 00:37:05.679
But I did tell her
he's eager to study,

00:37:05.680 --> 00:37:07.985
that he's gone
through basic education

00:37:07.986 --> 00:37:09.401
and that he could read!

00:37:09.402 --> 00:37:10.905
Isn't it pretty?

00:37:11.833 --> 00:37:15.204
It's a bicycle, look!

00:37:16.223 --> 00:37:19.685
While mom handled
my transition to the new school,

00:37:19.686 --> 00:37:22.120
I came up
with fantastical tales

00:37:22.121 --> 00:37:24.839
and wrote about sea monsters.

00:37:24.840 --> 00:37:28.093
THE SUBMARINE

00:37:43.389 --> 00:37:45.132
"The Submarine".

00:37:47.958 --> 00:37:52.279
One day, American submarine
JFK 300

00:37:52.280 --> 00:37:54.942
set forth from
the port of Las Vegas

00:37:54.943 --> 00:37:56.935
on a super risky mission.

00:37:58.460 --> 00:38:01.957
They made a stop
in the port of São Paulo

00:38:01.958 --> 00:38:04.251
to take on more passengers.

00:38:05.056 --> 00:38:08.199
As they neared
the Venezuela coastline,

00:38:08.200 --> 00:38:10.627
they picked up
on a powerful stench.

00:38:12.745 --> 00:38:15.362
The commander
ordered them to stop

00:38:15.363 --> 00:38:17.467
so they could listen
to a noise.

00:38:20.155 --> 00:38:23.947
Suddenly, all the sirens blared.

00:38:23.948 --> 00:38:26.385
Emergency! Emergency!

00:38:27.919 --> 00:38:29.766
A terrified crewman

00:38:29.801 --> 00:38:32.807
pressed the button
to fire a torpedo.

00:38:33.558 --> 00:38:36.834
The torpedo hit the octopus,
who died.

00:38:39.364 --> 00:38:43.532
As the submarine neared
the Las Vegas port,

00:38:43.533 --> 00:38:46.141
it was attacked
by a killer whale.

00:38:46.958 --> 00:38:50.447
The same crewman
who had killed the octopus

00:38:50.448 --> 00:38:53.857
fired 20,000 machine gun rounds
at the whale,

00:38:53.892 --> 00:38:55.722
killing it.

00:38:57.093 --> 00:39:00.488
Then, the JFK 300
American submarine

00:39:00.489 --> 00:39:03.241
arrived back
at the Las Vegas port

00:39:03.276 --> 00:39:06.747
and the entire American Navy
was there waiting.

00:39:08.880 --> 00:39:12.836
They had been saved
by Brazilian crewman Daniel.

00:39:17.124 --> 00:39:20.356
GIVE US A "BEFORE" DRAWING
AND AN "AFTER".

00:39:45.168 --> 00:39:46.881
What?

00:39:47.445 --> 00:39:50.832
Remember the last time
we were at the ranch?

00:39:50.896 --> 00:39:53.342
Sure, why?

00:39:53.343 --> 00:39:56.537
-You told me something.
-What?

00:39:57.668 --> 00:40:01.419
That you were going to study

00:40:01.454 --> 00:40:05.927
so you could find out
something about me, remember?

00:40:05.962 --> 00:40:09.510
-Right, I remember!
-Tell me again, what was it?

00:40:11.446 --> 00:40:14.617
Y'know the way you talk?

00:40:14.652 --> 00:40:17.734
That thing.
I wanted to find the cure.

00:40:19.492 --> 00:40:21.451
Why is that?

00:40:21.486 --> 00:40:23.947
'Cause you're my cousin.

00:40:25.854 --> 00:40:27.579
Gotcha.

00:40:27.614 --> 00:40:30.133
What do you think
it could be, man?

00:40:30.134 --> 00:40:32.038
-I don't know.
-You don't?

00:40:33.075 --> 00:40:35.760
-But I'll find out.
-You will?

00:40:36.664 --> 00:40:38.435
And what will you do
with that?

00:40:38.470 --> 00:40:40.304
I'll create the cure.

00:40:41.220 --> 00:40:43.827
-I'll create the cure.
-You'll create the cure?

00:40:43.862 --> 00:40:45.890
Does this part come off?

00:40:47.122 --> 00:40:49.817
It's possible,
but I'd rather not right now.

00:40:50.608 --> 00:40:53.666
-You know that I...
-Do I know what?

00:40:53.701 --> 00:40:57.936
That I don't know
what it is I have, right?

00:41:00.543 --> 00:41:03.748
-Does your mom know?
-No, no one does.

00:41:05.269 --> 00:41:08.257
Fine, I'll find out then.
Now I want to film you!

00:41:08.934 --> 00:41:10.304
Are you recording?

00:41:11.108 --> 00:41:12.859
Yeah, there's the red dot.

00:41:15.137 --> 00:41:17.813
I'm seeing her face.

00:41:17.848 --> 00:41:20.519
-You're recording now.
-I know.

00:41:21.417 --> 00:41:23.083
Can you see my...

00:41:24.585 --> 00:41:26.329
-Your what?
-No.

00:41:35.201 --> 00:41:38.035
-Are we filming then?
-If I know what?

00:41:40.955 --> 00:41:44.479
Why did you have that thing
when you were born?

00:41:46.978 --> 00:41:48.554
Why?

00:41:50.093 --> 00:41:51.732
I don't know, man.

00:41:51.733 --> 00:41:53.744
This film of mine
is about finding that out.

00:42:16.380 --> 00:42:18.208
You're turning
how many years old?

00:42:18.243 --> 00:42:20.363
-One years!
-No, not "one years".

00:42:21.208 --> 00:42:25.139
Two.
Show me on your fingers.

00:42:25.140 --> 00:42:28.035
-Two!
-One from each hand.

00:42:28.070 --> 00:42:30.276
There you go.

00:42:30.311 --> 00:42:32.555
What's your daddy called?

00:42:32.590 --> 00:42:34.568
Wawa!

00:42:35.410 --> 00:42:37.865
And what's your brother called?

00:42:39.152 --> 00:42:41.614
Dani.

00:42:41.615 --> 00:42:46.550
You never had any issues,
any jealousy over Beatriz.

00:42:47.613 --> 00:42:51.612
After all,
we spoiled you rotten too!

00:42:53.321 --> 00:42:56.326
Crank it up
'cause that's rock and roll!

00:42:56.327 --> 00:42:58.577
You weren't jealous of her.

00:43:00.660 --> 00:43:02.203
She was the one

00:43:02.204 --> 00:43:04.504
who got a little jealous of you
later on.

00:43:13.520 --> 00:43:16.151
Stop screaming.

00:43:16.186 --> 00:43:19.673
Dani, let her play with it.
Just this once.

00:43:21.279 --> 00:43:24.474
Dani, son.
Let her play with it.

00:43:24.475 --> 00:43:26.600
Give it back to Dani
afterwards.

00:43:28.209 --> 00:43:30.447
I'm putting it
by daddy's foot.

00:43:33.803 --> 00:43:36.699
Daddy, look at what you got
on your foot!

00:43:37.854 --> 00:43:41.206
You won't let me look.
Yeah, I got it.

00:43:41.241 --> 00:43:42.644
Take that off.

00:43:43.950 --> 00:43:46.328
Take it off, daddy.

00:43:46.329 --> 00:43:49.007
Let's go watch Dani's video.

00:43:50.244 --> 00:43:52.317
I want to watch it.

00:43:54.700 --> 00:43:56.455
Can I blow one out, mom?

00:43:57.308 --> 00:43:59.742
Dani wants
to blow a candle out too.

00:43:59.777 --> 00:44:04.024
-Dani's turn now.
-Let's sing "Happy Birthday"!

00:44:05.042 --> 00:44:07.665
-Two!
-Two candles for Dani!

00:44:07.669 --> 00:44:11.222
Happy birthday to Daniela

00:44:14.248 --> 00:44:16.386
Hey, show me respect!

00:44:16.421 --> 00:44:18.192
Get on this side
so you can film him.

00:44:19.160 --> 00:44:21.500
Who will it be

00:44:21.501 --> 00:44:23.706
Who will it be

00:44:23.707 --> 00:44:28.001
That Dani
will take down the aisle?

00:44:28.036 --> 00:44:29.492
That will depend

00:44:29.493 --> 00:44:31.060
-I don't wanna!
-Get married?

00:44:31.061 --> 00:44:35.969
It will depend

00:44:35.970 --> 00:44:38.696
On whether Daniela says yes

00:44:38.697 --> 00:44:40.941
Mom!

00:44:43.176 --> 00:44:47.684
Daniel is pitching a fit

00:44:47.719 --> 00:44:50.814
A hissy fit

00:44:50.815 --> 00:44:54.318
-And now, we cut the cake!
-Let's cut the cake!

00:45:12.512 --> 00:45:14.020
Bia.

00:45:14.551 --> 00:45:17.565
-Mom, she's in her panties!
-So what?

00:45:20.722 --> 00:45:22.400
Give it back to Daniel.

00:45:24.808 --> 00:45:27.996
Daniel, could you please
let her have it again?

00:46:04.458 --> 00:46:06.313
Very good, darling.

00:46:10.150 --> 00:46:11.911
Very good.

00:46:17.610 --> 00:46:19.389
Give Dani a hand.

00:46:19.390 --> 00:46:21.741
-No.
-Okay, he doesn't need it.

00:46:23.458 --> 00:46:25.962
-Hold on.
-He doesn't need it.

00:46:43.945 --> 00:46:47.175
That day, it took me
a minute and 15 seconds

00:46:47.210 --> 00:46:48.919
to put my shirt on.

00:46:51.160 --> 00:46:54.856
Seeing this footage
was very unsettling

00:46:54.857 --> 00:46:59.335
because it when I felt
most reliant on others.

00:47:00.853 --> 00:47:04.064
I didn't enjoy hearing myself
when I was little.

00:47:04.065 --> 00:47:05.815
Very good, little man.

00:47:06.807 --> 00:47:08.487
Little man.

00:47:08.488 --> 00:47:10.807
Any last words for us?

00:47:14.364 --> 00:47:15.661
Yeah?

00:47:15.662 --> 00:47:19.469
I felt like that garbled voice
wasn't my own.

00:47:22.448 --> 00:47:23.870
Baby.

00:47:25.231 --> 00:47:27.286
You're amazing, you know that?

00:47:27.287 --> 00:47:30.924
Gradually, I got used
to my own self

00:47:31.775 --> 00:47:34.485
and never considered
doing this film

00:47:34.520 --> 00:47:37.061
in anything but my own voice.

00:50:05.932 --> 00:50:07.614
Cut!

00:50:16.687 --> 00:50:18.262
Very good.

00:50:20.247 --> 00:50:24.210
We're filming Dani
when he's fresh out of bed.

00:50:25.785 --> 00:50:28.923
He hasn't done
anything else today.

00:50:28.924 --> 00:50:32.881
He just got up.
It's 10:40 AM.

00:50:34.116 --> 00:50:35.344
Hey.

00:50:38.431 --> 00:50:40.646
He's sticking
that tongue out on purpose!

00:50:40.681 --> 00:50:43.252
It's not that he's like that.

00:50:43.287 --> 00:50:45.577
He's just goofing off.

00:50:51.846 --> 00:50:53.666
Want mom to give you a hand?

00:50:54.750 --> 00:50:56.867
No, right?

00:50:56.868 --> 00:50:59.849
When I was 12,
I had an episode

00:50:59.884 --> 00:51:02.807
which greatly impaired
my motor capabilities.

00:51:04.558 --> 00:51:06.526
I fell over more often

00:51:06.561 --> 00:51:09.134
and didn't feed myself
at times.

00:51:09.169 --> 00:51:11.816
I experienced
more involuntary movements.

00:51:12.525 --> 00:51:14.777
My spatial awareness suffered

00:51:16.150 --> 00:51:20.653
and I struggled
to even get past a door.

00:51:24.810 --> 00:51:26.550
Take the egg.

00:51:29.387 --> 00:51:33.798
This sudden deterioration
troubled my parents,

00:51:33.799 --> 00:51:35.709
and so we decided

00:51:35.710 --> 00:51:38.893
to once again try to find out
what it was that ailed me.

00:51:38.894 --> 00:51:40.884
Take the wrapper for me.

00:51:40.885 --> 00:51:42.803
Leave it on the floor.

00:51:46.194 --> 00:51:48.240
There you go.

00:51:51.801 --> 00:51:53.910
I saw numerous doctors

00:51:53.945 --> 00:51:57.006
and a neurologist
put forth the possibility

00:51:57.041 --> 00:51:59.114
that I suffered
from Segawa Syndrome.

00:52:06.043 --> 00:52:08.668
In order to confirm
that diagnosis,

00:52:08.703 --> 00:52:13.633
we had to track the effects
of a certain medication

00:52:13.668 --> 00:52:16.369
and to that end,
they asked mom to film me

00:52:16.404 --> 00:52:18.607
in my everyday activities.

00:52:21.786 --> 00:52:24.924
Leave it in the armchair
and walk back.

00:52:31.277 --> 00:52:35.096
I took that medication
for roughly 20 days,

00:52:35.097 --> 00:52:38.020
but instead of improving,
I got worse.

00:52:46.186 --> 00:52:48.209
And back.

00:52:49.845 --> 00:52:52.127
Get back there, son.

00:52:53.168 --> 00:52:56.827
The doctor then told us
that having ruled Segawa out,

00:52:56.862 --> 00:52:59.860
he couldn't say what it was.

00:52:59.861 --> 00:53:02.324
Hold on, I can't see.

00:53:02.325 --> 00:53:04.206
I can't see you there.

00:53:05.192 --> 00:53:07.389
Very good.

00:53:08.162 --> 00:53:11.330
You can set that one down.
No need to bring it over.

00:53:13.804 --> 00:53:15.700
That's it.

00:53:21.320 --> 00:53:23.471
I remember
that during these episodes,

00:53:23.506 --> 00:53:26.637
when I lost my motor skills

00:53:26.638 --> 00:53:28.941
and stopped doing
so many different things,

00:53:29.864 --> 00:53:33.898
at times I pictured
a flying saucer showing up.

00:53:35.089 --> 00:53:37.754
The flying saucer
would heal me,

00:53:37.789 --> 00:53:41.696
curing my disability,

00:53:41.731 --> 00:53:45.229
and then I'd be free
to play soccer for Flamengo

00:53:46.184 --> 00:53:49.063
or be a Formula One driver.

00:53:49.415 --> 00:53:52.163
To be an astronaut.

00:53:52.812 --> 00:53:55.406
Free to try skateboarding.

00:53:59.379 --> 00:54:01.545
Mom, this rice is icky.

00:54:02.760 --> 00:54:05.630
-It can't be.
-It's hard.

00:54:09.431 --> 00:54:13.981
This is September 18th, 1996.

00:54:14.968 --> 00:54:18.142
We're taking up
recording Daniel again...

00:54:18.177 --> 00:54:20.653
Or rather, filming Daniel again

00:54:20.688 --> 00:54:23.221
as he carries out
his daily activities.

00:54:23.925 --> 00:54:28.620
Today we're filming Daniel
having lunch.

00:54:29.689 --> 00:54:35.083
He's already able
to feed himself now.

00:54:38.053 --> 00:54:40.566
It's a victory, isn't it, son?

00:54:47.957 --> 00:54:51.217
You can also drink
without a straw now, right?

00:55:01.879 --> 00:55:04.372
We're filming Dani today.

00:55:06.576 --> 00:55:09.989
As you can see,
he's eating with a fork now.

00:55:14.399 --> 00:55:17.956
Eat up, Dani.

00:55:17.991 --> 00:55:20.492
I'm sending it
to someone else too!

00:55:26.019 --> 00:55:30.253
Honey, have some
of your soda too.

00:55:39.540 --> 00:55:41.142
Come on.

00:56:11.487 --> 00:56:13.509
I mean, it's his job, right?

00:56:15.406 --> 00:56:19.473
Let's not make it too tight
so you don't get queasy.

00:56:20.433 --> 00:56:22.362
To my surprise,

00:56:22.363 --> 00:56:27.663
the MRI results didn't show
any brain damage.

00:56:28.590 --> 00:56:30.681
Yeah, that's tougher.

00:56:33.827 --> 00:56:35.852
For all my life,

00:56:35.853 --> 00:56:39.486
I'd told people
I had cerebral palsy,

00:56:39.487 --> 00:56:42.216
and all of a sudden,
I had no answers to offer.

00:56:46.758 --> 00:56:48.883
In order to move forward
with our quest,

00:56:48.884 --> 00:56:52.729
the recommended way to go
was a genetic investigation.

00:56:56.674 --> 00:56:59.484
The latest suspicion
was that I suffered

00:56:59.485 --> 00:57:02.385
from a rare form
of muscular dystonia

00:57:02.386 --> 00:57:04.380
which might have
not yet to be described.

00:57:04.381 --> 00:57:07.343
-This is tiring.
-Oh, yes.

00:57:07.344 --> 00:57:09.422
Come on, let's stretch.

00:57:09.423 --> 00:57:11.521
You run faster than
this at the clinic.

00:57:11.522 --> 00:57:13.671
He also spoke of love

00:57:13.706 --> 00:57:18.175
and taught us to pray
to our Lord above.

00:57:18.176 --> 00:57:21.659
Sitting there,
she said to herself...

00:57:24.525 --> 00:57:26.447
Let me help you, darling.

00:57:26.448 --> 00:57:29.085
Oh, how I'd like...

00:57:30.930 --> 00:57:35.271
"Oh, how I'd like to teach
Jesus's prayer to all.

00:57:35.306 --> 00:57:38.770
The Lord's Prayer."

00:57:40.033 --> 00:57:46.325
Suddenly, her cousin Maria
showed up and asked:

00:57:46.360 --> 00:57:48.384
"What are you doing?"

00:57:48.419 --> 00:57:50.473
"I'm reading a story
from the Bible."

00:57:56.806 --> 00:57:58.874
Take your costume off now!

00:57:58.909 --> 00:58:01.197
Jesus is in his nightgown!

00:58:02.152 --> 00:58:04.067
I never liked it
when people said

00:58:04.068 --> 00:58:05.931
that God had chosen me.

00:58:05.932 --> 00:58:08.854
No, my God didn't choose me!

00:58:10.206 --> 00:58:15.836
My God wants
nothing but the best for me.

00:58:16.700 --> 00:58:19.697
God had nothing to do
with any of that.

00:58:19.698 --> 00:58:22.709
It just happened.
It's a natural part of life.

00:58:22.744 --> 00:58:25.495
We face hardship
and we must deal with it.

00:58:25.530 --> 00:58:27.384
Leave God out of it.

00:58:27.385 --> 00:58:29.307
I wasn't chosen in the least.

00:59:00.877 --> 00:59:03.874
-Hello? Who is this?
-This is Jesus.

00:59:04.911 --> 00:59:06.892
-Jesus?
-That's me.

00:59:06.893 --> 00:59:10.167
Is your boss in?
Get her on the line for me.

00:59:11.390 --> 00:59:14.936
Ms. Sara,
it's Jesus on the line.

00:59:20.310 --> 00:59:23.636
Jesus? Is that really you?

00:59:23.637 --> 00:59:24.998
It's me.

00:59:24.999 --> 00:59:29.228
Listen, tidy the house up
'cause I'm dropping by tonight.

00:59:29.263 --> 00:59:31.813
Tonight?
Be here at 8 PM, then.

00:59:31.814 --> 00:59:35.130
-I'll get dinner ready.
-Okay.

00:59:37.153 --> 00:59:40.112
Maria!
Jesus is coming over tonight!

00:59:40.113 --> 00:59:43.384
We're going to fix him
a lovely dinner.

00:59:43.385 --> 00:59:45.698
I want everything
spotless, Maria.

00:59:45.699 --> 00:59:47.736
No dragging your feet,
you hear?

00:59:47.737 --> 00:59:50.114
A famous celebrity
is coming over.

00:59:50.115 --> 00:59:51.753
Come on, Jesus!

00:59:58.149 --> 01:00:00.280
Jesus!

01:00:00.281 --> 01:00:03.436
Jesus! Jesus! Jesus!

01:00:07.881 --> 01:00:11.675
-Wait, wait.
-Again, again!

01:00:43.700 --> 01:00:47.644
It was purely by chance
that I started climbing.

01:00:47.645 --> 01:00:49.687
A friend invited me.

01:00:54.388 --> 01:00:56.781
I remember
not telling my mom about it.

01:01:00.853 --> 01:01:04.889
When I got home
and told her I'd climbed,

01:01:04.890 --> 01:01:07.413
she said I was crazy,

01:01:07.448 --> 01:01:09.434
that I'd hurt myself,

01:01:09.469 --> 01:01:11.735
that I'd crack my skull in half.

01:01:15.857 --> 01:01:18.817
I told her
it wasn't that dangerous

01:01:18.852 --> 01:01:22.701
and I explained
about all the safety ropes.

01:01:24.710 --> 01:01:28.123
So she said:
"I'm buying you a helmet."

01:01:28.124 --> 01:01:30.136
I told her I wouldn't use it.

01:01:30.171 --> 01:01:34.334
"Wearing a helmet on a wall
would be ridiculous!"

01:01:38.445 --> 01:01:41.453
The next day,
she came to have a look

01:01:41.488 --> 01:01:44.497
and realized it wasn't
as dangerous as she thought.

01:01:45.094 --> 01:01:47.731
That soothed her,
relatively speaking,

01:01:47.732 --> 01:01:49.779
and she allowed me
to keep climbing.

01:01:54.115 --> 01:01:56.607
I remember
that around that time,

01:01:56.642 --> 01:01:58.603
there was a disagreement

01:01:58.638 --> 01:02:02.510
between my occupational therapist
and my physical therapist.

01:02:03.418 --> 01:02:05.996
My occupational therapist
thought it'd be good for me

01:02:06.031 --> 01:02:08.368
while he thought
it'd be bad

01:02:08.403 --> 01:02:11.062
because climbing focuses
on the tips of our feet

01:02:11.097 --> 01:02:13.454
and I tended to walk
on the tips of my feet.

01:02:16.254 --> 01:02:18.928
But as it happens,
it had the opposite effect.

01:02:18.963 --> 01:02:23.494
By activating
the tips of my feet like that,

01:02:23.529 --> 01:02:25.796
my walking form got better.

01:02:30.402 --> 01:02:31.993
Shit!

01:02:54.440 --> 01:02:56.060
Got it!

01:03:03.824 --> 01:03:05.651
I guess I was about 13

01:03:05.652 --> 01:03:10.116
when I first got the urge
to be with a girl,

01:03:11.836 --> 01:03:13.821
and at that age,

01:03:13.822 --> 01:03:16.877
none of us have a good idea
of how to go about it.

01:03:17.711 --> 01:03:21.744
I had a friend
who'd been held back a year,

01:03:21.745 --> 01:03:24.141
so he was sorta like
the experienced veteran.

01:03:25.293 --> 01:03:27.493
He told me
to write her a note.

01:03:29.932 --> 01:03:33.082
There was a party
that weekend

01:03:33.117 --> 01:03:35.512
and I wrote her a note.

01:03:36.515 --> 01:03:38.854
Make room, Tubby.

01:03:38.889 --> 01:03:41.043
Who will it be

01:03:41.078 --> 01:03:46.152
That Dani
will take down the aisle?

01:03:46.187 --> 01:03:51.414
That will depend

01:03:51.449 --> 01:03:55.786
On whether
Priscilla says yes

01:03:55.787 --> 01:03:58.217
You go, Priscilla!

01:03:58.252 --> 01:04:00.904
That day,
she called me over to talk

01:04:01.477 --> 01:04:03.264
and I was told,
for the first time,

01:04:03.265 --> 01:04:05.604
those fateful words:

01:04:05.605 --> 01:04:08.612
"I like you as a friend."

01:04:22.663 --> 01:04:24.098
At that time,

01:04:24.099 --> 01:04:26.908
the rejection
made me freeze up.

01:04:29.994 --> 01:04:31.735
I did feel back then

01:04:31.736 --> 01:04:34.175
that if it weren't
for my disability,

01:04:34.176 --> 01:04:36.374
it would all be easier for me.

01:04:46.763 --> 01:04:48.343
Seven years later,

01:04:49.451 --> 01:04:52.571
some friends of mine
pulled me out of a party.

01:04:53.465 --> 01:04:55.392
They told me:

01:04:55.393 --> 01:04:57.691
"Tonight's the night."

01:04:57.692 --> 01:04:59.687
And they took me
to a brothel.

01:05:01.271 --> 01:05:04.754
I'd never discussed it
with anyone,

01:05:06.402 --> 01:05:09.988
but I guess they'd deduced
I was still a virgin.

01:05:09.989 --> 01:05:14.089
They'd all been with girls
and had sex already.

01:05:15.263 --> 01:05:19.214
I was the only one who had yet
to sleep with a girl.

01:05:20.112 --> 01:05:22.116
At that moment,

01:05:23.484 --> 01:05:26.841
the pressure to not screw up

01:05:26.842 --> 01:05:31.378
and my fear of how they'd react
if I said no

01:05:33.396 --> 01:05:35.972
left me with little choice.

01:05:36.783 --> 01:05:38.410
As it turns out,

01:05:38.411 --> 01:05:42.315
I had sex before I even
got my first kiss.

01:05:55.855 --> 01:06:00.045
My first kiss
came a year later.

01:06:01.220 --> 01:06:02.831
Even then,

01:06:02.866 --> 01:06:06.468
she was the one
who made the first move.

01:06:07.373 --> 01:06:12.453
She'd seen me before,
walking around Barra Mansa.

01:06:13.640 --> 01:06:16.157
She tracked me down
on social media

01:06:16.158 --> 01:06:19.705
and we set up a date
at the movies.

01:06:20.747 --> 01:06:25.210
I felt insecure
about how to handle it

01:06:28.602 --> 01:06:31.394
and worried
she wouldn't like my kiss.

01:06:32.772 --> 01:06:36.258
That first kiss
made me happier

01:06:36.293 --> 01:06:39.276
than when I lost my virginity.

01:06:59.327 --> 01:07:00.840
Years later,

01:07:01.678 --> 01:07:06.285
I met a girl
who also had a disability.

01:07:07.113 --> 01:07:09.397
I asked her out

01:07:09.398 --> 01:07:15.023
and as I walked her home
after our second date,

01:07:15.024 --> 01:07:17.039
we kissed.

01:07:18.036 --> 01:07:20.907
I was still a bit unsure
of what I was doing

01:07:20.942 --> 01:07:24.734
and she was visibly nervous.

01:07:26.784 --> 01:07:31.947
I thought it was on account
of her cerebral palsy,

01:07:31.948 --> 01:07:34.770
but later I'd find out

01:07:34.805 --> 01:07:37.627
I was the first guy
she'd ever gone out with.

01:07:38.331 --> 01:07:41.387
I figured it might be easier
to have a relationship

01:07:41.388 --> 01:07:44.786
with someone
who also had a disability,

01:07:44.787 --> 01:07:46.786
but it wasn't.

01:07:47.590 --> 01:07:51.269
Our mentalities
were very different.

01:07:59.562 --> 01:08:01.641
Then came dating apps,

01:08:02.272 --> 01:08:04.556
in which I saw the possibility

01:08:04.643 --> 01:08:07.078
to connect with people
more easily.

01:08:12.823 --> 01:08:16.555
But I didn't always mention
my disability.

01:08:16.556 --> 01:08:20.119
There was this one girl
who didn't know about it.

01:08:21.747 --> 01:08:26.459
We agreed to meet
at the mall's food court.

01:08:28.942 --> 01:08:31.430
She showed up a bit early.

01:08:31.431 --> 01:08:33.526
She told me where she was

01:08:33.527 --> 01:08:36.903
and asked what color
was my shirt.

01:08:37.634 --> 01:08:41.694
I made my way over,
but couldn't find her.

01:08:44.406 --> 01:08:47.822
I suspect she ran off
when she saw me.

01:08:49.377 --> 01:08:50.926
All right, we're done.

01:08:52.066 --> 01:08:54.748
Daniel de Castro Gon*alves.

01:09:06.769 --> 01:09:09.094
Those apps were important

01:09:09.129 --> 01:09:12.048
because they afforded me
experience

01:09:12.049 --> 01:09:14.341
and helped me
have an easier time

01:09:14.342 --> 01:09:16.372
in dealing with my block.

01:09:18.198 --> 01:09:19.790
As this year
comes to a close,

01:09:19.825 --> 01:09:21.552
we are left with the certainty

01:09:21.587 --> 01:09:24.859
that much of what we learned
in our time together...

01:09:24.894 --> 01:09:27.063
I went on to do things

01:09:27.098 --> 01:09:30.068
that seemed unimaginable
to that shy kid I was before,

01:09:30.794 --> 01:09:32.302
like kissing a girl

01:09:32.337 --> 01:09:35.576
in the health clinic queue
at noon.

01:09:38.963 --> 01:09:42.102
That girl is my girlfriend now.

01:09:48.552 --> 01:09:50.587
Aircraft crew,
we will be landing shortly.

01:10:20.555 --> 01:10:24.974
With the MRI results
leaving me in the dark again,

01:10:25.009 --> 01:10:27.242
I made my way
to São Paulo

01:10:27.277 --> 01:10:29.073
to undergo genetic testing.

01:10:37.166 --> 01:10:39.290
All right, Daniel.

01:10:39.291 --> 01:10:41.847
-Come on in and have a seat.
-How are you doing?

01:10:41.848 --> 01:10:46.011
I'm Nurse Maira
and I'll be drawing your sample.

01:10:46.012 --> 01:10:48.698
Can I lie down?
It's easier for me.

01:10:48.699 --> 01:10:50.132
No problem.

01:10:59.177 --> 01:11:02.032
Just a little prick.
Don't pull back, okay?

01:11:02.067 --> 01:11:03.147
What?

01:11:03.182 --> 01:11:05.773
Don't flinch
when you feel the sting.

01:11:05.808 --> 01:11:08.160
Don't worry, I got it.

01:11:15.991 --> 01:11:18.559
Here we go.
Just a little prick.

01:11:20.587 --> 01:11:22.916
Open your hand,
and that's it.

01:11:22.951 --> 01:11:24.724
-Are you doing okay?
-Yeah.

01:11:24.759 --> 01:11:27.086
I'll unstrap your arm
in just a moment, okay?

01:11:28.055 --> 01:11:31.233
-I need four milliliters of blood.
-Okay.

01:11:43.204 --> 01:11:48.367
GALA
NOVEMBER 14TH, 2001

01:12:04.743 --> 01:12:06.921
On the day of my prom,

01:12:06.956 --> 01:12:10.248
I felt like a king in my tux.

01:12:27.483 --> 01:12:30.570
The following year,
I moved to Rio for college.

01:12:32.440 --> 01:12:34.856
I'd always loved sports,

01:12:34.891 --> 01:12:38.622
and dreamed of working
in sports journalism.

01:12:57.098 --> 01:12:59.763
During my studies,

01:12:59.764 --> 01:13:02.846
I applied to work
in the college network.

01:13:04.026 --> 01:13:07.267
I chose to apply
for a job as an editor

01:13:07.268 --> 01:13:10.210
because I felt
someone with a disability

01:13:10.211 --> 01:13:12.481
would have a tough time

01:13:12.482 --> 01:13:15.687
landing a job as a reporter
or camera operator.

01:13:21.301 --> 01:13:24.473
That was where I did
my first editing work.

01:13:35.446 --> 01:13:39.056
After a stint at a local
Rio de Janeiro TV station,

01:13:39.091 --> 01:13:42.388
I realized that wasn't
what I wanted,

01:13:42.423 --> 01:13:44.685
and I decided
to study filmmaking.

01:13:48.576 --> 01:13:51.133
Around that time,
I created a blog

01:13:51.168 --> 01:13:54.403
in which I wrote about my life
and my disability.

01:13:58.534 --> 01:14:00.557
In that same time period,

01:14:00.592 --> 01:14:05.092
I put together a short
on the electronic music scene.

01:14:09.474 --> 01:14:11.470
At the raves I used to go to,

01:14:11.505 --> 01:14:14.078
although I didn't take
any drugs,

01:14:14.113 --> 01:14:16.571
a lot of people
thought I was high.

01:14:23.708 --> 01:14:26.675
They even asked me
if I was selling E.

01:14:29.576 --> 01:14:32.694
For a while,
I tried to explain it to them,

01:14:32.695 --> 01:14:36.425
but once I realized
people didn't understand

01:14:36.426 --> 01:14:39.064
or simply didn't care,

01:14:39.099 --> 01:14:41.462
I started playing along,

01:14:41.497 --> 01:14:44.880
and although I was square
and didn't take anything,

01:14:44.915 --> 01:14:47.096
I told people
I'd taken all sorts of things.

01:14:57.971 --> 01:14:59.653
It was only much later

01:14:59.688 --> 01:15:02.103
that I did MDMA at
a Carnival party,

01:15:04.527 --> 01:15:07.482
and I can say it was
a very interesting one.

01:16:43.367 --> 01:16:45.300
"An absence of mutations

01:16:45.335 --> 01:16:47.850
which might explain
the clinical condition."

01:16:48.665 --> 01:16:51.275
That was the result
of my genetic testing.

01:16:53.932 --> 01:16:56.667
Given the rare nature
of my condition,

01:16:56.702 --> 01:16:58.188
the genetic background

01:16:58.223 --> 01:17:00.547
might never
have been deciphered

01:17:00.582 --> 01:17:04.982
and the exam's results
were inconclusive.

01:17:06.729 --> 01:17:08.611
In such cases,

01:17:08.612 --> 01:17:10.853
it is recommended
for the patient

01:17:10.888 --> 01:17:13.032
to get tested again
in the next two years

01:17:13.067 --> 01:17:16.104
since new advancements
in the field of genetics

01:17:16.139 --> 01:17:19.417
might pop up
and help solve the case.

01:17:20.729 --> 01:17:24.303
Meanwhile, all I know

01:17:24.338 --> 01:17:26.808
is that I don't know
what ails me.

01:17:48.376 --> 01:17:50.924
Back when I decided
to make this movie,

01:17:50.959 --> 01:17:53.781
resuming my search
for a definitive diagnosis

01:17:53.816 --> 01:17:56.670
seemed like the best way
to tell my story,

01:17:58.276 --> 01:18:00.979
but over the course
of this process,

01:18:00.980 --> 01:18:03.378
other questions
came to the fore.

01:18:06.190 --> 01:18:08.338
What if,
apart from this disability,

01:18:08.339 --> 01:18:11.522
I bore traits
unlike the ones I have?

01:18:15.990 --> 01:18:18.098
What stories
would I be telling you

01:18:18.099 --> 01:18:20.022
if I were a woman?

01:18:21.149 --> 01:18:25.053
What if I were black or gay?

01:18:28.081 --> 01:18:30.695
If I lived
on the city outskirts,

01:18:30.708 --> 01:18:33.820
would people see me as they do,
living on the richest area of Rio?

01:18:36.257 --> 01:18:38.331
Would I have given talks
at schools

01:18:38.332 --> 01:18:40.467
if I'd been a transvestite?

01:18:45.671 --> 01:18:48.102
If it weren't
for my disability,

01:18:48.103 --> 01:18:50.093
would I be considered normal

01:18:50.094 --> 01:18:54.296
just due to being a white,
cisgender heterosexual male?

01:19:02.077 --> 01:19:05.384
My disability is merely
one of my traits.

01:19:05.385 --> 01:19:07.563
It is a part of who I am.

01:20:21.231 --> 01:20:22.911
MY NAME IS DANIEL